OMAHA (KPTM)- In one week Hannah Copley is turning twelve.
She wasn't supposed to live past the age of ten, and in her short life Hannah has struggled with more in a decade than some do in their entire lives.
"I'm alive, I'm alive, I'm alive," sang Hannah.
It's a Justin Bieber song that Hannah knows backwards and forwards.
"It brings you to your knees, because you now she knows what it means," said Hannah's mom, Beckie Copley.
The song has particular meaning for Hannah because she has spent most of her life in the hospital, battling a rare autoimmune disease, with no cure.
Hannah wasn't supposed to live past the age of ten.
"Her 12th birthday is here in a week, and I didn't realize how much anxiety was built around that," said Beckie.
Anxiety because, Beckie said, the wear and tear on her daughter is starting to show.
"Her body is tired, and its showing signs the last few months of that. Her kidneys are tired, her liver is tired," said Beckie.
The challenges for the family, both medical and financial, keep coming.
This past February, Hannah was in the hospital. She called Beckie at three in the morning to tell her she was going into emergency surgery. "I didn't notice there was a fresh small layer of snow on the ground. I lost control of my van on the way to the hospital and I slid into the concrete," said Beckie.
Beckie totaled their family van. She had just canceled collision insurance to help pay the medical bills.
Now the family uses a borrowed truck to get around because Beckie can't afford the repairs. "She can fall so quick-she can spike a 106 fever in no time flat," said Beckie.
When Hannah gets tired she has to use a wheelchair. When it's an emergency, Beckie has to act quick to set up the ramp and push the 300 pound chair up a steep ramp.
Despite all these challenges, Hannah keeps singing her song, every time she comes home from the hospital. "I'm alive, I'm alive, I'm alive," sang Hannah.
"You think you beat all the odds, but at the same time you know that it's not the case," said Beckie. "We haven't beat nothing, we're just blessed to have some extra time."
You can donate to help out the Copley family by clicking HERE.
For Hannah's facebook page, click HERE.