Girl with Severe Nerve Dysfunction Trying to Get to Mayo Clinic - FOX 42: Omaha News, Sports and Weather; kptm.com |

Girl with Severe Nerve Dysfunction Trying to Get to Mayo Clinic

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OMAHA (KPTM)-A fundraiser is being held for a Council Bluffs girl with a serious nerve dysfunction.

11-year-old Jasmine Bird has gastroparesis and a rare disease called dysautonomia. The disease causes Bird to sleep for days. It also puts her in chronic pain.

"I sometimes I'll go to stand up and I'll fall right back down because my legs are too weak," Jasmine Bird said.

"A lot of doctors have never heard of it or know how to treat it. But there's a lot of people undiagnosed with it," Carrie Bird said.

Bird can't even play outside without an ice packed vest to keep her body temperature cool, since she is unable to sweat.

"Because if she goes outside and she doesn't have it on, she can have a heat stroke," Carrie Bird said.

Bird loves playing with her therapy cats when she isn't traveling to seek treatment. Only a few doctors are familiar with her disease. The medical treatment is expensive and most of it isn't covered by insurance. That is why the family is hosting an ice cream social to raise money and awareness. They hope to get her treated at the Mayo Clinic.

"Now we're traveling around 400 miles just to the Mayo clinic alone just one way. So. I've traveled to Iowa and Kansas City."

Bird's mom said Jasmine eats ice cream all of the time because it is hard for her to eat solid foods.

"Her throat swells up, her esophagus swells up so sometimes she can't eat or drink and sometimes it's really hard to swallow."

The fundraiser is August 3rd at Community of Christ Church on Kanesville Boulevard. It will go from 10am-7pm. There will also be raffles and silent auctions.

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